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Tell Us About Your Experience With the Liver Transplant System

ProPublica is looking to hear from patients, medical providers and regulators as part of an ongoing investigation.

Kristi Ouimet comforts her 2-year-old son Matthew as he receives an IV in preparation for a liver and kidney transplant at the UCSF Benioff Children’s Hospital in San Francisco in 2013. (Jane Tyska/Digital First Media/East Bay Times via Getty Images)

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Every year, thousands of Americans facing liver failure try to get new organs. Many of these are successful. But some experiences with the liver transplant process go wrong. The chances of success often depend on which hospital replaces your liver, according to data from the Scientific Registry of Transplant Recipients.

Problems with liver transplants can occur before a transplant, during surgery or after the procedure. Medical experts said that issues might stem from failing to document that a donor’s blood type is compatible with the recipient or medical errors during surgery. There is also evidence that a disproportionate number of people of color do not get the help they need. We hope this questionnaire can help us make a more complete list of when, how and why problems occur.

We want to speak with patients who have faced adverse outcomes, as well as family members who lost loved ones to the medical process. We also want to speak with medical providers or regulators familiar with the process to better understand how it works.

Will you help ProPublica reporter Max Blau learn about the liver transplant process? If you have insights that could help guide our reporting, please fill out our brief questionnaire below.

OUR COMMITMENT TO YOUR PRIVACY: We appreciate you sharing your story, and we take your privacy seriously. We are gathering these stories for the purposes of our reporting, and we will not publish your name or information without your consent.

We are the only ones reading what you submit. If you would prefer to use an encrypted app, see our advice at propublica.org/tips. You can message Max Blau on Signal at 224-436-2120 or [email protected].

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